The heartbreaking news that Joules Smith passes away in her parents’ bed has left millions of TikTok followers and supporters mourning her loss. Joules, a 6-year-old TikTok star, succumbed to diffuse intrinsic pontine glioma (DIPG), a rare and aggressive brain tumor, on December 9, 2024. Her parents, Joe and Elisha Smith, shared the devastating update, expressing that they stayed by her side until her final moments.
A Journey Marked by Courage and Strength
Earlier this year, Joules was diagnosed with DIPG, an incurable brain tumor that tragically affects children. Doctors gave her only nine months to live, marking the start of an emotional and challenging journey for the Smith family. Despite her terminal diagnosis, Joules continued to spread joy through TikTok, where her dances and bright personality captured the hearts of millions.
@gingerjoeandjoules We love you our little dancing queen 💕#dancingforjoules ♬ original sound – gingerjoeandjoules
Her father, Joe, initially shared her diagnosis on TikTok, explaining that Joules had started showing unusual symptoms that led to the discovery of a tumor. Tests at King’s College Hospital in London confirmed the devastating diagnosis. Joe tearfully shared, “She will start to deteriorate, and we have got to sit back and watch our beautiful, funny little girl fade away.”
Joules’ Impact on TikTok and Beyond
Throughout her illness, Joules inspired countless people online. Her story sparked the viral TikTok trend, “Dancing for Joules,” which helped raise awareness about childhood cancer. Joe encouraged fans to keep the trend alive, saying, “Let’s carry on dancing for our beautiful little Joules because I know she would still be dancing.” Even in her final months, Joules brought hope and joy to those who followed her story.
Support From the Community
After Joules’ diagnosis, family friend Kirk Norcross started a GoFundMe page to help the Smith family focus on creating meaningful memories with their daughter. The fundraiser raised over $120,000, allowing the family to prioritize Joules’ care without financial worry. Joe and Elisha expressed immense gratitude to everyone who contributed, noting that the funds made it possible to give Joules the best life they could during her remaining months.
A Heartbreaking Goodbye
On December 9, 2024, Joules Smith passed away in her parents’ bed, surrounded by love. Joe described his daughter as “the bravest, kindest, most beautiful little girl.” Her mother, Elisha, penned a touching tribute, saying, “We are so proud of you, princess. You made this world a better place.”
@gingerjoeandjoules 💔💔💔💔💔 the hardest video i will ever make 💔💔💔 but wanted you guys to know ❤️
♬ original sound – gingerjoeandjoules
The Smith family has invited supporters to a memorial service on December 27, 2024, at The Garden of Eden Crematorium in Kent, England. They hope to give Joules the biggest and best send-off, celebrating her life and legacy.
While the world mourns that Joules Smith passes away, her legacy continues to inspire. Her story shed light on childhood cancer, and her unbreakable spirit touched millions. Joules may no longer be with us, but her memory lives on in every dance, every smile, and every person who was inspired by her courage and love of life.
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